Blogging about life in Minnesota, raising our five kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Monday, February 09, 2009

I am T-I-R-E-D

First, I sat up until 2:00 a.m doing absolutely nothing productive, except monitoring Angela who was VERY awake and talking all-night-long! So, I really had no sleep.

Then I took her to the orthodontist to go over Angela's care plan, and here it is:

March 3rd she goes into the dentist for a regularly scheduled cleaning, which works great since her last 2 teeth to come in can grow in the rest of the way. They're *almost* done. They're in, just have to come up further.

The following week we'll go in so they can put spacers between her teeth.

The week after that we'll go back to have the palate expander put on. This has to be cranked on once a day for a couple of months to widen her palate. This should prove to be interesting!

Once the weekly cranking is done, they will solidify the expander and leave it for a month so the new bone can firm up. 

When it's time for that to come off she'll get a different kind of thingy tthat looks regainer-is, but I don't remember how long that stays on. Once it's time for that tome come off, she'll  get her braces on. 

What a long process. They did warn me about swallowing difficulties with the expander in place. Lovely, Angela already has a compromised swallow, so I'm sure this will help just a ton! (was that dripping with sarcasm like I intended?)  We'll have to watch her really close for aspiration. Lovely!

That done she and I headed over to the Mall of America to get a one year pass for the park. This allows her PCA's to take her and, while it's expensive now, it will ultimately save me money, as they take her there a lot! I also need passes for the Children's Museum, the Minnesota Zoo, Underwater world, and Cascade Bay which is a waterpark near us. Her PCA's should have no trouble keeping her busy this summer!

So that's my day so far. The behavior specialist is due here in 1/2 hr. I don't know if I can keep my eyes open till she gets here. If I allow them to close I may never wake up! Then I have a PCA coming while I leave to take Roman to dog school. I'm thinking it would be a good night to call in sick for EVERYTHING and just go to bed early!

1 comment:

Kathie Brinkman said...

Oh--one more tip. Katie's speech articulation totally tanked after the expander went in and she started drooling alot--again! her speech is a bit better now, but still worse than before the expander.