Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Thursday, January 11, 2018

Dear Blogger: September 2017

Hi Blogger!

September 2017...

The kids went back to school! 
Oh man, do our buses come early this year!

We even managed to take our annual driveway picture!

One early morning as the kids were eating breakfast, I caught some movement out of the corner of my eye on the deck. The Hummers had found us!!!! With the kids off to school, I had nothing to do (cough cough), so I found myself in the sun, photographing the birds. I will spare you all the pictures, because I took thousands throughout the month, literally.

Angela and I took lots of field trips together. 
This is the famous Spoon and Cherry at the Minneapolis Sculpture Garden

These two darlings turned 13!!!!!

Audrey wears her cake well. 

Angela  had yet another CT scan done. 
She's had so many that I don't even remember what this one was for.

We went to the annual Step Up for Down Syndrome
With the Down Syndrome Association of Minnesota 
(Abel didn't want to be in the picture.) 

Our little Dorothy. This is the only time of day her
face is clean, before her very first bite of 
breakfast. I figured I should document it. 
And also, she forgot how to smile.

Dean and Axel both had a Friday off
so we took a field trip. We tried out the 
food trucks at Rice Park in St. Paul.

Goodbye September!

Dear Blogger: August 2017

Oh Blogger, we're getting there, aren't we?

Well, I have to back up to July for a minute, because I missed some pictures! I just didn't look in the right files. Silly me!

The Aquatennial Parade. So much fun! 

Notice I have a tight grip on shirts? These two wanted 
to bolt toward whatever musical group came by.

The best big sister!

This guy! He loves him some swim time!

Dean and I celebrated 14 years together!

And my oldest biological baby turned 30! Happy birthday Noah!

Now lets get back to August, shall we?

It takes 1.75 lbs of blueberries to get us through a Sunday morning breakfast!

I continued running...

And after a 22-year-long hiatus from running, I ran my first 5K.
I came in 2nd place in my age group, with a pretty decent time! 

Dean and Asher took in a Twins game with some friends.

 And before we knew it, it was county fair time!

Angela and I had several girl dates.

And we spent time at local parks.

Angela had a second sleep study done. 
She was found to have very severe Central sleep apnea
and wears now sleeps with a cpap machine. (as Abel and I too!)

And on to September we go! 

Tuesday, January 09, 2018

Dear Blog: July 2017

Well hello there, Blog!

Yep, I've been really busy the last couple of weeks. Between sick kids, including Abel in the hospital with pneumonia, Christmas and New Years, I got behind. Again. I intended to get all caught up before 2018! Oh well. I'm back now.

So July 2017 was really busy. I know it was, but I can't seem to find any photographic evidence. Apparently I just spent a lot of time with the kids, enjoying our time in the sun!

You may remember we fed several hummers over the summer months. They didn't find us our first summer here, so I hoped they would this year. They usually arrive in our area the first week of May, so I put out my feeders the last week or so of April, hoping to entice a pair or two to hang out in our yard. Even though I kept refilling the feeders with fresh nectar every couple of days, by July I had given up hope of being discovered by the birds.

Like a lot of people in Minnesota, what we DID get is an invasion of Asian beetles! They are nasty things, killing trees all over the place. My outdoor plants and our trees were attacked. We were able to save the trees before they were completely decimated. Unfortunately some of our trees were gotten by a fungus that destroyed them, so they'll be coming down this spring.

The 4th of July came and went. The only kid who got in front of the camera was Amos.

 A friend was moving and her dog stayed with us two weeks. He joined me on some runs. His name is Dudley, after my Dudley who passed away two years ago.

I re-discovered my good camera. Now I just to relearn how to use it! LOL

Audrey happens to love the camera, even though she refuses to smile.

And that, blogger, is the last of the photographic evidence of July! 

Wednesday, January 03, 2018

Dear Blog: June 2017

Dear Blog,
Sorry, I had to skip a day to deal with some medical excitement around here. More about that later. For now, let me tell you about our crazy busy June!

You may remember that we used to have a small above-ground pool in the yard. The kids LOVED it, and we spent most of the summer in it. But it was small, which limited us to 3 people in the pool at a time. We *really* want to put an in-ground pool in, but we can't on our lot. Then I was engaged in my new favorite habit, which is called "Browsing Facebook Marketplace", when I stumbled upon a local fellow selling  his GIANT above ground pool. And its wasn't round! 

Dean was still recovering from his double knee replacement so I was on my own on this project. I got my son Tyler and his friend to come help me move this GIGANTIC thing. I got it all taken apart and those strong boys moved it into the van. 

Once we got it home, I went to work getting the yard ready. You read in my post about May that I had the steps off the deck moved to the other side of the deck to make way for the pool. Then I had 9yards of sand dumped on the driveway. That is a LOT of sand! And, it had to be moved from the drive way to the back yard, by wheelbarrow. Tyler and his friend helped with two yards, and the rest I did on my own. Oh man, that was a lot of work, but for once in my life, all that hard work felt good.

Then I had to get the sand leveled. I didn't really know what I was doing, so the internet helped me some. Mostly I was winging it.

We took a break and celebrated Angela's 21st birthday. She requested a Tye-dyed cake. Dean is the cake maker in the family, and he did not disappoint! Angela was very excited to have her Tye Dye cake. She had a group of friends come over to celebrate. I have no idea why I have no pictures of that! 

There was a RUSH to get this done because 1) there was heavy rain coming and that sand is 18 inches deep on one end and it would wash away and 2) We were going to be leaving town and I wanted the pool filled and warming up while we were gone. And also, that rain would still wash away the sand if we didn't have the weight of the pool on top of it.

While the kids waited patiently for me to finish the pool, they had some other water fun. 

These two headed to Down syndrome camp. It was Axel's first every experience with sleep-away camp. He loved it! 

Once all the sand was ready, we were kind of stuck! That liner is HUGE and weighs about 500 lbs. A couple neighbors were nice enough to come lend us hand and drag it into place. 
Getting the sides up wasn't so easy either! I was frustrated trying to do it myself, and Dean wasn't able to help much because of his knees. Another neighbor came and helped us. What would we do without nice neighbors? 
FINALLY it was time to put water in the thing! It took 10 hours to fill. 
And then it was full! YAY!!!! We left town a couple hours later.

Our family was headed to Joni & Friends camp in Michigan. Unfortunately Abel isn't really fond of activities like this, and staffing for him at the camp would be a big problem. Nobody can ever quite be prepared for Abel, as he is a handful. We arranged for him to go to another camp that was staffed just for him. He had a GREAT week! He was so excited to go on his own vacation! 

 Joni & Friends was an amazing experience for our family!! It is staffed 1:1 for each of the kids who have disabilities. Those staff, called STM's (Short Term Missionaries) become like family over the course of the week. We had so much fun!

On the way, we stopped on the shore of Lake Michigan to play around.

Amos and Audrey loved it the most.

We discovered these rare finds, thought to be extinct,
do still exist! 

On the way we stopped to eat. Our kids are always very well behaved
in restaurants, and this morning was no exception! The wait staff
always has lots of compliments for our kids, and that usually leads to 
conversations about adoption, and how these kids came to be in our family.

Imagine our surprise when we asked for our tab, and and received this! 
We were so blessed! 

Once at camp there were all kinds of activities for the kids.
Amos and Audrey loved the fire truck!

Amos signs "truck".

Audrey doesn't always show a lot of interest in things
but she sure loved the fire trucks!

There was horseback riding 
(notice Asher managed to take a dangler along for the ride)

And I do mean, he LOVES them. I am missing
a bunch of pictures, but one night there was a petting zoo
and Amos was in absolute heaven with the little
pony that was there. He didn't want to leave to eat apple pie.
And horseback riding? Oh he was just beside himself.

Those who know Axel will be stunned that
he ENJOYED rock climbing! 

Almost enjoyed the rock wall too.

Asher, who loves climbing all things wasn't really so thrilled
with the rock wall. He didn't like the harness. 
He DID love the zipline though!

Our very dear friends the Stumbo family was at the house
right next door to us. Asher has a slight crush on Ellen. 

Angela also made a new friend. I have forgotten
her name at the moment. She is in her 60's. One thing I found interesting
is people often don't recognize that Audrey has Down syndrome.
But this lady looked at her and said, "Audrey, look at my eyes, what do you see?
They look just like your eyes Audrey, because we both have Down syndrome." 
She recognized Audrey's features right away. 

Our family grew over the course of camp. This is all of us
pictured with the kids' STMs. They will forever
be part of us.

Everyone commented that Angela seemed to find her way into pictures
at camp. They do a slide show at the end of the week and Angela was in an awful
lot of pictures! LOL In July Joni & Friends sends out a 
thank you card to all the STMs. No surprise that Angela was on it!

When it was finally time to go home, we stopped 
in Wauconda IL to visit my sister Ila and her husband Bob. 

When we finally arrived home, the pool was ready for swimming!

As we expected, the kids spent most of the summer 
in the pool. 

I also did a lot of running in June, working toward my goal of running
a 5K by August. I made good progress in June! 

As if June wasn't exciting enough, I also turned 50 years old. 
YAY ME! I feel like I EARNED 50! LOL
Dean pulled together a surprise birthday party for me.
I only managed to take a few pictures, and didn't get one with all of my friends.
Thanks everyone for a great birthday celebration! 

Yep, that about sums up June 2017!