In a couple of posts I've commented that Asher does this funny little blinky/winky thing at us when we tell him no, or to do something he doesn't want to do. It just lasts for a second, and it took me many tries to be able to catch it on video.
And then today happened. Today something is wrong. The morning was going along just fine and everything was normal. Asher and Axel were in the bedroom and I went in there to see what they were up to. That's when I found Asher with his face going crazy. He was grimacing and winking/blinking constantly. It looked very seizure-like. I was able to talk to him, but I'm very familiar with Angela's simple-partial seizures that she can also talk through. (not always making sense, but she can talk.) What Asher was doing was very different from Angela's seizures.
Having a son with Tourette syndrome, I would say it was very tic-like. It lasted for several HOURS. He went down for a nap a couple hours after I discovered it and woke up still doing it. Later in the evening it was gone, then showed back up about dinner time. By the time Dean got home from bowling it was no longer constant, but it was there.
I was able go get several videos of this during the day. The first is during lunch. Although he's interacting, he seems confused. Notice there are blinks, eyes rolling upward, and the mouth grimace to one side:
This was about 2 hours later as we got ready to go to therapy. He seems frustrated by it:
I've put in a call to have him seen by the pediatric neurologist. Of course I'm leaving town on Tuesday. UGH!!! I'll only be gone a couple of days, but still!
Edited to add: OMG, I totally forgot that I was told Asher was on phenobarbital for years for what I was told were febrile seizures. Ummm..."febrile seizures" are not treated on a daily basis. So, this little event makes me wonder if there is more to the story. Anyway, he'll be seeing a neurologist, but still this is concerning.