Blogging about life in Minnesota, raising our five kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Wednesday, December 16, 2009

Yep, it was tight!

So today's surgery was an endoscopy with balloon dialation of the cricopharyngeal muscle. When the doctor got the scope in there, the area was VERY tight, and he had a hard time even getting the scope in. He dilated it with the largest balloon they have, and we'll just have to wait and see how it works.

She's been drinking liquids today but doesn't want to eat anything yet. That's ok, because it's soft foods only until tomorrow, then we'll see how regular foods go.

If they go down fine she can stick with them. If they don't then she needs to stay on a soft food only diet indefinitely while we figure out what to do next.

All these years she's done a pretty good job of protecting her airway, but it's only a matter of time before she ends up getting very sick from aspirating food. When I told him how well the soft diet went a couple of months ago, he laughed. He said his main goal is to give her a good quality of life, which is to be able to enjoy food pain-free.

For tonight she is crabby and demanding. She's perseverating on wheelchairs for her stuffed animals and driving all the nurses nuts with that. I have a couple cute pictures to post but I left the cord for my camera at the hotel so I'll have to do that later.

Thank you everyone for your prayers and kind words this week. They mean the world to us.

3 comments:

Beverly said...

keeping Angela in my prayers.

Monica said...

Thinking about you guys!! And saying prayers!! Give Angela a big hug from us!!

Sheila said...

hey, what else are nurses for in the eyes of a prodded kid? I hope she makes a quick recovery. Give her a hug from all of us.