Blogging about life in Minnesota, raising our five kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Sunday, March 13, 2011

Two Months from Today

Two months from today, on May 14th, the four of us will board a plane for Philadelphia. Once there we'll have the rest of that evening to play around a little bit. Not much, but a few hours to do something fun as a family.

On May 15th Axel will be admitted to Shriner's Children's hospital. He'll have an IV put in so that he can be well hydrated for his surgery the next day.

May 16th is the big day. Bright and early in the morning he will be taken away from us. I imagine he'll already be sedated so he won't remember that part. I'm glad! Then he will be put to sleep and the halo put on before the first incision is made.

The process of fusing Axel's cervical spine is expected to take anywhere from 4-8 hours. The biggest variable is the density of Axel's vertebrae, which his surgeon won't know until he can actually see them.

When Axel comes out of surgery, his world will be very different. Our lives will be different as we learn to live with the halo and other post-operative issues related to spinal fusion.

Two months from now, that's what we'll be doing. No wonder i can't sleep tonight.

2 comments:

Hevel said...

Wow, I thought it was going to be sooner... either way, this, too, shall pass and Axel's life will be all the better afterwards... and yours too, not having to worry about every minor move he makes. We keep Axel ben Dean ;-) in our prayers. :)

Mommy to those Special Ks said...

We're praying already! Surgery is on Kennedy's birthday, so there is no way I'll forget!