Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Friday, January 22, 2016

Urgent prayers

Overnight it was decided to stop Angela's ammunol and see what ...I don'teven know what. At midnight her ammonia level was at 122. When I come into the PICU her room is furthest away from the door. This morning when I entered the unit I could hear her screaming. She is in a lot of pain and her ammonia is at 375. They're can't give her anything but motrin because they need to be able to monitor her mental status. Right now she is not very coherent but awake. She NEEDS to have this MRI done but her system is not stable enough for anesthesia. We expect her to fall into a coma again soon if we can't get her ammonia level down.

She was started on large doses of Lactulose to help clear the ammonia from her body. This drug causes its own problems as it does its job. 

3 comments:

Tink said...

Sending love, prayers...please ask if they have someone who can come and provide Reiki for her...

Cindy said...

Oh gosh can't that sweet girl catch a break? Prayers

Cindy said...

Oh gosh can't that sweet girl catch a break? Prayers