Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Wednesday, January 20, 2016

Afraid to get our hopes up

The team of Angela's metabolic geneticists have a theory about why she keeps having bouts of hyperammonemia, and why even after treatment she quickly spikes and needs another treatment. Get this...

If their theory is correct, it could be



We are afraid to get our hopes up. But prayers. Oh please pray their theory is correct! It would involve a major and invasive procedure, but it is far better than the way Angela is surviving now! 


gps said...

Wow, that's amazing! You could really use a miracle in this area just about now. Here's praying for your incredible medical team to come through with a CURE!

Cindy said...

Praying for this to be true.

Cindy said...

Praying for this to be true.