Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Friday, January 22, 2016

Multiple problems

We know more than we did this morning, but we don't know enough.

First, Angela's clotting rate is a bit slow. Clotting factors (like puzzle pieces) are made in the liver. Vitamin K increases the liver's ability to produce clotting factors. Angela is being put on 3 days of Vitamin K while they work to figure out the other problems.

The MRI shows *multiple vascular abnormalities*. Some are large. Some are small. Blood flow within the liver is going this way and that. There are also several lesions. There is also regional edema, including in the duodenum, and the head of the pancreas is enlarged due to this edema.

What we do know: It is more and more clear the problem lies within Angela's liver and this is NOT a Urea Cycle Disease. Instead Angela has a liver that is a mess.

The Intensivist is deferring to the Heptologist (Liver Specialist) who will be in to see us tomorrow. In the meantime Angela is miserable and in pain.


4 comments:

eliz said...

(((((HUGS))))))))) praying

Kate said...

Praying for your sweet family...I am in Eden Prairie and would be so happy to help in some way. Is there something I can bring your family on Sunday- a dinner or something? I know you probably have strict dietary needs, but I can be flexible. I am a special education teacher and am so amazed at you and your family. I would be happy to do some vacuuming, run some errands, pick up groceries....Please don't hesitate!

Katie
katenordby@gmail.com
612.205.2206

Julie Rolffs said...

Praying for answers, for pain relief, and for perseverance for you & Dean ...

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