Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Friday, June 15, 2012


Meet Destany, my sister's granddaughter. My niece's daughter. Destany: turning 7 next month, a  spunky little girl who loves life.

Last week Destany started acting irritable and was having trouble with her balance. The doctor said she had an ear infection.

Yesterday, June 13th, she starting having seizures. She was rushed to Mankato hospital where the found a 2 inch tumor. She was moved to Minneapolis Children's hospital where she spent today having  an MRI done to determine exactly what is going on.

We are devastated by the news.

Destany has a Diffuse Intrinsic Pontine Glioma (DIPG) This is an inoperable tumor. Destany was sent home from the hospital. Next week she will return to begin a course of radiation which will buy her a few months where she will feel good. At that point the glioma will become very aggressive and take over her brain stem. The doctors are saying life expectancy beyond 12 months is very rare.

Obviously this was very rough news for her parents to hear. Our entire family is devastated. This isn't supposed to happen to children. Parents aren't supposed to watch their children go through such a diagnosis.

They're going to need a lot of support. Not only emotional, but financial as well. They are more than an hour away from either hospital where they can receive treatment. Gas for cars, meals while at the hospital, money to do some fun family things while they still can. Destany has four little brothers and right now, its all about creating memories for everyone as a family.

Gift or cash cards, or monetary donations can be sent to my sister at

To Destany
C/O Sandie Adams
2100 Blake Ave
Lester Prairie, MN 55354


Becca said...

I saw your posts on FB yesterday, and am so, so sorry to hear about Destany. I can't imagine what your family is going through right now, and my heart goes out to all of you. I'm going to go home and hug my daughter tighter tonight.

Amy L said...

OMG, Leah, I am so sorry. What a precious little girl. You and your whole family are in my prayers.

the.lilangel said...

I am so sorry! Destany and your family will be in my prayers. As much as I would like to I can't donate any money but I would like to send a card if thats ok? How old is she?

emianulli said...

Your news made my heart stop! I'm so sorry! I know a little girl who had the same diagnosis & am always devastated to hear that any other little one has the same. Please let us know if they start a public website for her? My heart goes out to all of you!

Imogen said...

There are no words to express how sorry I am :( This is beyond tragic.

Ciska said...

I will be praying for Destany and your family. I'm so sorry to hear this.

Anonymous said...

destany is a very amazing little girl, and its not fair that her life is being cut short! to see your little girl in pain and very ill and you cant do much for her is very painful, i wish i could take her pain and recieve it in my own body so she can live her life like a little girl should, the doctors apt. didnt go as plan today new symptoms, new meds, so please just keep her in your heart and prayers, and we will never give up and stop fighting for her!! mommy and daddy love you destany with all of are hearts, and thanks everyone for your prayers!!