Blogging about life in Minnesota, raising our five kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Tuesday, June 19, 2012

Can You Imagine

 A mother. A father. Every day fighting to keep their child alive. Every day, praying their child will get another chance. And yet in order for their prayers to be answered, another family has to say goodbye.

Some families live in the hospital. Their child on drugs and machines to do the work their organs cannot do. Waiting...waiting for the transplant coordinator to come rushing in. It's time. It's time for your child.

This afternoon families who must ALWAYS stay within two hours of their transplant center, who keep a bag packed at all times, who always have a pager on them, felt that sudden rush of adrenaline when that pager went off. THE PAGER. The one that tells them to drop whatever they are doing, get in the car NOW. Hurry...today MIGHT be the day a was found for your child.

And as they drive to the hospital praying this isn't another false alarm, they know. They know that somewhere, on their knees with grief, is a mother and a father of a child they had to let go. That mother and father made the choice to save them from the same fate.

Right now, at the very moment I type this, there are children, parents, families, who are driving back home. The disappointment. Today is not the day. Not for their child.

Because Destany's tumor was cancerous, her organs were rejected by whoever makes those decisions. Instead her mommy rocked her to sleep at 3:00 p.m. on Tuesday, June 19th, 2012.  Princess Destany Mariah Thomsen

Please pray for Destany's mom Melinda, her dad Joey, step dad Shaun, and Destany's little brothers.

Precious Jesus here I am
A gentle child your little lamb
Though I am not very old
I am ready to walk on streets of gold
Thank you for the time I had
Making memories with Mom & Dad
Bring them peace and comfort when they cry
And let them know its not goodbye
Bring them laughter and calm their fears
Let them know in heaven there are no tears
The pain is gone the joy is true
Let them know that I’m here with you
Hold me Jesus and take my hand
Walk with me thru the promised land
Let Mom know this was your plan for me
Let her feel a gentle breeze and know that it’s a kiss from me
Let Dad know of your plan too
Fill his heart with gladness too
For I love them Jesus and they love you
Hold them close when they are feeling blue
Keep them close to you and let them see
All the blessings you gave to me.
Loving parents, friends and family
Take me home Lord as I am
A gentle child your little lamb

10 comments:

Kate said...

I am sorry her organs were not accepted, but God bless her parents for being willing to donate & for trying to help other children live when theirs could not.

I am so sorry for the loss of such a precious little girl, Leah.

DandG said...

Was Angela close to her? How is she taking it?

Leah S. said...

Angela has not seen Destany for a couple of years. Tonight when she asked why I was upset I asked if she remembered who Destany was. She didn't seem to. This both saddens me and relieves me at the same time. Angela has been to funerals and understands them. They boys have not been nor would they understand. I don't think we will take them.

Mark and Melanie said...

Praying, praying, praying for Destany's family. This is very close to home to me right now and I can only imagine what they must be going through. May God's gentle arms enfold them.

Jennifer said...

I'm so sorry. I'm surprised they couldn't use ANYTHING. It doesn't change the loving choice they made though. When my sister in law passed away at the age of 27, our family wanted to donate her organs. Unfortunately, none could be used with the exception of her kidneys. We were grateful for that, obviously, but disappointed that it couldn't be more. Prayers for your family.

Hevel Cohen said...

I am very sorry for your loss. :(

Ciska said...

This must be so hard for your family. I'll be praying for you all.

Hevel Cohen said...

Unfortunately there is more risk in transplants from people with cancer than anyone is willing to take. Destany's life and the courage and selflessness of her parents in this situation is amazing. I keep them and your family in my prayers and hoping for healing for Destany's family.

Imogen said...

I'm sorry Destany's organs were not found to be suitable.

Again, words cannot express how sorry I am for her parents and for your family.

I told my husband about your post tonight, and we both sat in silence watching our ten year old daughter just dancing around without a care in the world. I just cannot imagine such pain as that which your sister must be going through right now.

Love and hugs and prayers sent your way x x

cecilia said...

I'm so sorry and we will be praying for destanys family