Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Thursday, December 01, 2011

Neck Update

As you know, before I left for Serbia Axel's neck had been bothering him. We waited for the orders from his surgeon for a CT scan but they never arrived. Then he seemed to be doing a little better so we decided to do a "wait and see" approach and I would deal with it as soon as I got home.

Well, Axel's been having some problems with school, and he's also started rubbing the back of his neck again.  We have no idea if the behavioral problems are related to pain or my being gone or what, but we're going to give him the benefit of the doubt. Axel needs to have a sedated CT scan so yesterday Dean took him in for a pre-op exam and tomorrow (Friday) they'll head down to St Paul Children's for the test. A ct scan only takes a few minutes, and most kids his age would be able to lay there still for those minutes. But Axel is very claustrophobic, not to mention scared to death of doctors. Rather than try it without sedation only to have Dean end up taking yet another day off work to reschedule a sedated test, we're just going straight for that IV and a nice little nap!

Dean is really nervous about taking Axel for this test. While it's very routine for me to run kids through these things, getting to IV's, knowing my way around the buildings and all of those things, it's very new for Dean. The few times he's been along for something he just followed me. Dean is a great dad and I know he'll do just fine.

Once the test is done Dean will be taking the CD straight to the post office to have it sent to Axel's surgeon in Philadelphia to have a look at. Sometime next week we should know what's going on in there.

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