Blogging about life in Minnesota, raising our six kids with Down syndrome while battling Breast Cancer.

Be the kind of woman that when your feet hit the floor in the morning the devil says, "Oh shit! She's up!"

Wednesday, February 06, 2013

Some Days

Some days a kid just needs to sleep.

Last night I picked Angela up from floor hockey practice and I could tell she was just wiped out. He leads a busy day you know. Just like most high school students do. The difference is it takes more than the typical amount of energy for her to make it through her days.

For several years, I think the beginning of 3rd through the end of 6th grade, Angela had a shortened school day. She just could not make it through a whole day. When she was there all day staff spent a majority of their time redirecting behaviors and trying to keep everyone else safe. What we didn't know was she was having nocturnal migraines and daytime and nocturnal seizures. Once we got those things diagnosed she was a totally different kid. The majority of difficult behavior was gone and she was suddenly able to not only make it through a full day of school, but also extracurricular activities.

Unfortunately the last several weeks have been so rough on her system. Her lungs still haven't settled down and her asthma continues to be a major issue. (in fact, as I type this, I'm waiting for her doctor's office to open so oral prednisone can be called in.)

This morning I made a judgement call. Although she was in bed at 7:00 last night, she was still out cold when it was time to get her up at 5:30 this morning. I'll admit I didn't try too hard to wake her up, but as I type she's been sleeping for 13 hours. Something told me today was one of "those" days. Some days she just needs a day to sleep. She might wake up energized and ready for school, or she might sleep a couple more hours and still be groggy. It's a "wait and see" kind of day. Wait and see how she's doing before I make a decision as to weather or not she's going to school. She does have a floor hockey game today that she won't be happy to miss if she doesn't go, but some days....some days she just needs a day to recoup in the middle of the week. 

1 comment:

Becca said...

Oh, poor thing. :-( I hope she is feeling back up to speed today! Sammi was a little under the weather this week (cold? sinus infection? who knows?), and pretty wiped by the end of the school day on Tuesday. My husband asked her if she was tired (to which she shockingly admitted "yes, a little bit tired") and asked if she wanted a nap ("okay."). That NEVER happens, unless she really is wiped. Glad to know our kids know their boundaries and limits from time to time!