Then there were the phone calls. HOLY COW I've heard from everyone today! Without repeating it all, here's the plan....
Tuesday 8:30 pm to the hospital for a full-spine MRI. We'll not only be ruling out AAI, but checking for an other anomolies along the way. Ths is to rule out her problems being orthopedic vs. neurological. This is a 2 hour scan. We're doing it late so I can give her nightime meds and she sleeps through the whole thing instead of having to sedate her with an IV.
Weds at 12:30 arrive at Mayo Clinic for check-in. 1:20 meet with the neurosurgeon and neurologist. When that's done she'll be admitted to the hospital, stay overnight then Thursday morning will have an SPECT and Angiogram. (and a couple other tests that I've now forgotten the name of.) THESE are THE TESTS that we need done. When these are done we will know if we're going to Boston, Standford....or worst case scenario....nowhere but to sit back and wait for her to have a stroke.
So that's what I know. I'm having a good day today because I have a new love in this new social worker. He said things to me, or asked questions that I'd been feeling for months, but never been able to put words to. Things like, "So...when was the last time you were able to let your guard down and just be you?" Ummm HELLO! 11 years ago when she had her first stroke!
So, that's our day. We'll see how next week goes.