A couple of weeks ago (June 6th) Angela turned 11 years old. It's been a scary, eventful, amazing, life-changing, glorious 11 years. I m...

So what do we know? NOTHING!!!! The Neurosurgeon at Mayo thinks there are two possibilities. 1) she's having some type of seizure activi...

Well, I never heard from the neurosurgeon over the weekend. I tried really really hard to be patient, but by Sunday my patience had run thin...

Ok, very first words out of the NS's mouth were, "I don't think she has Moyamoya, and I don't think she needs surgery...yet...

The MRI went fine We got to the Neuro's office, gave Angela her night-time meds, and she slept through the entire 90 minute procedure. I...

Here's an explanation of the tests Angela will be having next week: Full-spine MRI: Lots of people have had MRI's done. A full-spi...

Wow...Looooooooooong day here today! First, I had a meeting with a public health nurse and new social worker about the TBI waiver. (traumati...

Here's what was said at our dr. appt. Our Neuro spoke with the neuro at Mayo, and was of 1:00 was still playing phone tag with the NS in...

I talked to our Neuro's office. We're going in at 12:30 today to discuss "what's next". He's talking to Dr. Scott ...

Ok, we were supposed to wait while our Neurologist is contacting Dr. Scott out in Boston and Dr. Meyer at Mayo. As of 5:30 last night he had...

5:30...wouldn't you know I walk outside for 5 minutes and that's when the phone rings. Sadly, only a voicemail message from the Neur...

UGH It's 3:45 pm. I'm going crazy waiting for the neurologist to call me back. I know he's busy, and that we're not his only...

I wish I could figure out how to get the newer posts to the bottom of the page, and the old ones at that top. Instead I have to tell people ...

I think the doctor thought I wasn't hearing what he was saying. I know my face was blank. Often when parents receive devastating news, t...

Here are some cute Angela videos. She's such an amazing kid. You'd never know by watching her all that she's gone through, or wi...

I guess it's time for me to start blogging on a daily basis. I need to be able to keep my thoughts together, and to keep people updated ...

Life is crazy in my house. And no....no pun intended! There are days when I wonder how I'm going to maintain my sanity and make it to th...

originally written in January 2006 How many parents, when they discover they're expecting a baby, say, "We don't care if it...

You know, some people just don't think before they speak. I have been guilty of doing this myself on occassion. But when people don'...

This was originally written in Jan of 2006, but somehow it disappeared! It now appears in the book "Gifts, Mothers reflect on how child...