AAI, AOI and the DS community

If you're part of the the Down syndrome community, and you have a child who has Atlanto-axial Instability (AAI) or Atlanto-occipital Instability (AOI) and either had spinal fusion surgery, will have fusion surgery, or is on precautions because of questionable instability, please contact me ASAP at deanleah@comcast.net. If you're in the community, please help me spread this around by posting on your Facebook pages, your blogs or wherever it will get seen! I'll have more to post on this in a couple of days.

THANK YOU!