tag:blogger.com,1999:blog-13970003.post5145738521558900018..comments2024-02-25T21:33:44.400-06:00Comments on Garden of Eagan: Narcoleptic InsomniacLeah Springhttp://www.blogger.com/profile/02326240393099112570noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-13970003.post-88251938665203745072019-12-06T17:16:37.864-06:002019-12-06T17:16:37.864-06:00Yes, I've been using CPAP for about three year...Yes, I've been using CPAP for about three years now. All my prior sleep studies were negative for Obstructive Sleep Apnea until three years ago. But, I have lost 90 lbs since that time. My CPAP machine says I'm having zero episodes so I've been going without it and am back to being tired. But...processing out loud...I also stopped taking my multivitamins (because I ran out) and I always get more tired when I stop those. Time to get back into my good habits! Leah Springhttps://www.blogger.com/profile/02326240393099112570noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-17831356302620997062019-12-06T07:37:13.572-06:002019-12-06T07:37:13.572-06:00Ahh, so much like me. Depending on which doc I tal...Ahh, so much like me. Depending on which doc I talk to, I have either Narcolepsy induced Insomnia or the other way around. It runs down my whole maternal line, sibling, kids, cousin, mom, grandma, her sister, and my aunt. <br /><br />The CPAP helped a lot; right now, it's dead, and I'm feeling it in that it keeps the sleep cycle more intact.<br /><br />64 words and asleep twice typing it...Chillyjimhttps://www.blogger.com/profile/02891172555226041684noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-23251836037987659292019-12-04T18:50:28.861-06:002019-12-04T18:50:28.861-06:00Rebel-Wranger,
Do you have sleep paralysis? I used...Rebel-Wranger,<br />Do you have sleep paralysis? I used to have this very frequently when I was in my 20's and 30's. I just had an episode a few weeks ago, for the first time in YEARS! It is so scary. Leah Springhttps://www.blogger.com/profile/02326240393099112570noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-69571072869984768462019-12-04T18:48:10.902-06:002019-12-04T18:48:10.902-06:00Uknown, I hope your comment was meant in humor. Un...Uknown, I hope your comment was meant in humor. Unfortunately, you take what is a very real medical issue and turn it into nothingness because "every person I know with a 9-5 and a child to take care of" has this. <br /><br />Several years ago I had breast cancer and went through chemo. A few months after I completed treatment a good friend of mine was diagnosed with the same type of cancer. She asked me how to prepare for the chemo side effects. I said, "The fatigue you feel from chemo is not something I can describe." She said, "Oh, I get fatigued now, so I get it." I just said no...no you do not. You do not understand chemo fatigue until you have experienced chemo fatigue. A few weeks later she called me. "Oh..My..GOD!! I thought I knew what fatigue was. I really had no idea! This really is indescribable." <br /><br />And so, true, is "narcoleptic insomnia". The COMPLETE INABILITY to keep your eyes open while driving. But I could be fine one day, and not the next. The fog that can be part of Narcolepsy. When I am in a face to face conversation with a person, while I am standing, and I am falling asleep. When I was in Army Basic Training, marching in formation, with my EYES CLOSED then erasing into the person in front of me. When I can't drive from here to the gas station 1 mile away without having to pull over to close my eyes. When I cannot read a story to my kids. And many, many other activities. THEN, struggling the entire day to keep my eyes open, and I finally go to bed and I can't sleep. And people who have Narcolepsy can very quickly get their days and nights turned around. One of my adult kids also has Narcolepsy and he has learned to only work night jobs. This allows him better success at wakefulness without having to take medication. All of that is narcolepsy, and no...it is NOTHING like what the average parent working a job with kids experiences. Leah Springhttps://www.blogger.com/profile/02326240393099112570noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-59073343940469901482019-11-27T21:28:36.626-06:002019-11-27T21:28:36.626-06:00I knew someone with this also, wait, actually ever...I knew someone with this also, wait, actually every person I know with a 9-5 and a child to take care of. Anonymoushttps://www.blogger.com/profile/13295469096655190785noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-39651801780072986212017-03-28T09:42:43.128-05:002017-03-28T09:42:43.128-05:00Ive been telling people for some time that its pos...Ive been telling people for some time that its possible to be a Narcoleptic Insomniac mainly because im proof of it and friends see it...calling me an old man cause to tgem it looks like i need a nap ALL THE TIME...but im always up at any time of day...Anonymoushttps://www.blogger.com/profile/10945406949710800041noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-57402494011780263212015-02-04T03:28:55.916-06:002015-02-04T03:28:55.916-06:00So happy I'm not alone nor crazy.So happy I'm not alone nor crazy.MrsNancyhttps://www.blogger.com/profile/15928760014627849385noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-48237676686983691222014-08-29T05:26:24.609-05:002014-08-29T05:26:24.609-05:00I'm glad to know I'm not the only narcolep...I'm glad to know I'm not the only narcoleptic insomniac (I call it insomnolepsy lol) on this planet!!<br /><br />I seriously thought I was the only one. <br /><br />It's like having the bi-polar of sleep disorders for me. -___-Dr. Legacyhttps://www.blogger.com/profile/09025596839209642746noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-78587734855707123642013-01-04T11:59:28.917-06:002013-01-04T11:59:28.917-06:00Unfortunately, not everybody loves sleep with Narc...Unfortunately, not everybody loves sleep with Narcolepsy. I got into so much trouble with it when I was younger, with family, school, and even work. My girlfriend is an insomniac and doesn't fully understand, that sleep is like a constantly set up trap. Like I'm dangling my feet over a bear trap, just waiting for me to get relaxed enough to grab me. I also am one of those narcoleptics that awakes extremely startled rather often. So I will fall asleep in the middle of doing something, or intensely buried in thought, and awake hours later halfway through that same thought. I also commit "automatic actions," which means I can perform basic tasks without awaking. IE: Going to the bathroom and back to bed, walking from living room to bedroom, detouring for a drink of water sometimes, all with no recollection.<br /><br />I did love this story though! It always comforts me to not be alone with this.Rebel_Wranglerhttps://www.blogger.com/profile/17012053842915816915noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-38465913181642720032011-02-13T06:28:44.534-06:002011-02-13T06:28:44.534-06:00Wow, funny I would come across this at 4:30 in the...Wow, funny I would come across this at 4:30 in the morning because I can't sleep! My story is so much the same too, 4 kids instead of 5!Nykreimhttps://www.blogger.com/profile/03262404052445512087noreply@blogger.comtag:blogger.com,1999:blog-13970003.post-65166866774745888572008-11-19T06:20:00.000-06:002008-11-19T06:20:00.000-06:00Did I write this??? lol Seriously, other than the...Did I write this??? lol Seriously, other than the fact that I only have 1 child, this sounds just like me.AmberKTPhttps://www.blogger.com/profile/17193688745304377402noreply@blogger.com